More Blockades

So the transfer is good to go, but our little Kaylie isn't just yet. They did a swallow study today which revealed that her decreased muscle tone is allowing her to aspirate a small amount of milk when she eats (this means it goes down into her lungs - not a good thing). So, she is on total tube feedings until she gets stronger unless she is fully awake and even then I am only allowed to feed her 10 to 15 ml (about half an ounce) of thickened breastmilk. And, she lost weight again last night, so they are uping her calories again to see if we can get her to gain weight and become more alert. So until they can clear her of all specialty care she needs here, we won't be going home to Idaho. As to how soon they decide that, your guess is as good as theirs, just we just keep waiting and hoping and standing by our little girl - what else can we do?