Code Blue

So sorry it has been a while since our update and as many of you may have guessed, it was not for a good reason. On Friday Kaylie had a major relapse and is now in critical condition. The story can be long and involved but I will try to shorten it without leaving out anything important. On Friday around noon while she was recieving her feeding via NG tube, Kaylie spit up a large volume of breastmilk, leading her nurse to believe that she had aspirated some not only because of her history but also because her color wasn't good, so she called the neonatologist and the nurse practioner to come look at her. It became apparant pretty quickly that Kaylie needed help breathing, so they put a tube down her throat and hooked her up to a ventilator to help her breathe. They found out later that she actually was breathing just fine, but it is better to be safe rather than sorry.
Then, after they had gotten her all settled and I was back by the bedside watching the nurse give her meds and get her situated, she began bleeding from her mouth and from the other end and her heart rate dropped. At this point they called a code blue, which means cardiac arrest and everyone comes running. Kaylie was resucitated and they began working on stabilizing her bleeding, which was everywhere in her GI tract and from every place they have poked her for an IV.
Kaylie is still very critical and is bleeding on and off. They have determined that she went into septic shock, which has caused her to go into what is called DIC where her clotting factors clot to each other instead of her blood, so she has nothing to clot with. They have been giving her every type of blood product they can to try and stabilize her from Factor 7 to plateletts to fresh frozen plasma, but the DIC won't resolve until they clear the infection that is raging within our little girl. She was put on general antibiotics, but was not put on one specific to the bacteria until today.
Another major issue Kaylie is facing is because she has had to recieve so may transfusions, she is very, very swollen and overloaded with fluid, but her kidneys were affected either by the infection itsself or the shock she went into because of the infection and she has not been making very much urine to get rid of the extra fluid. She is also having very low blood sugars because of the stress she is under with fighting the infection.
The neonatologist and nurse practioner have decided that this may be bigger than they originally thought (gee, really?), so Kaylie now has a nurse practitioner, neonatologist, geneticist, infection control, GI specialist, oncology specialist, developmental specialist and surgeons all working on her case. Currently they are all working on their piece of the puzzle to help figure out just what is going on with Kaylie, but they have moved back to square one with the thought of this having to do with the mass on her liver and that it may be cancer.
I think that is pretty close the whole story. Sorry if it came across confusing, but I am writing this quite late and after a very long weekend, but we wanted to let everyone know what is going on. Robert came down on Friday and will stay until we have some answers and until Kaylie starts doing better instead of worse. We appreciate everyone's concern, love and prayers and know that you all would like to help in any way you can, but really the best anyone can help us right now is to simply keep us in your thoughts and prayers. We hope you all had a nice Easter weekend and know that we will do our best to keep you all updated so you don't worry needlessly.